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  • 1.  CDC issues 15 calls for comment

    Posted 06-11-2025 02:57 PM

    Today's Federal Register includes many calls for comment on CDC data collections, including the following:

    1. National Notifiable Diseases Surveillance System - https://www.federalregister.gov/documents/2025/06/11/2025-10514/agency-forms-undergoing-paperwork-reduction-act-review
    2. Well-Integrated Screening and Evaluation for Women Across the Nation - https://www.federalregister.gov/documents/2025/06/11/2025-10512/agency-forms-undergoing-paperwork-reduction-act-review
    3. National HIV Surveillance System (NHSS) - https://www.federalregister.gov/documents/2025/06/11/2025-10620/agency-forms-undergoing-paperwork-reduction-act-review
    4. Risk factors, clinical course, presence and persistence of virus in various bodily fluids, and risk of sexual transmission among U.S. adults with Oropouche virus disease - https://www.federalregister.gov/documents/2025/06/11/2025-10518/agency-forms-undergoing-paperwork-reduction-act-review
    5. One Health Harmful Algal Bloom System (OHHABS) - https://www.federalregister.gov/documents/2025/06/11/2025-10619/agency-forms-undergoing-paperwork-reduction-act-review
    6. National Center for Health Statistics (NCHS) Rapid Surveys System (RSS) - https://www.federalregister.gov/documents/2025/06/11/2025-10618/agency-forms-undergoing-paperwork-reduction-act-review
    7. Emergency Cruise Ship Outbreak Investigations (CSOIs) - https://www.federalregister.gov/documents/2025/06/11/2025-10516/agency-forms-undergoing-paperwork-reduction-act-review
    8. National Healthcare Safety Network - https://www.federalregister.gov/documents/2025/06/11/2025-10513/agency-forms-undergoing-paperwork-reduction-act-review
    9. National Program of Cancer Registries Program Evaluation Instrument (NPCR-PEI) - https://www.federalregister.gov/documents/2025/06/11/2025-10617/agency-forms-undergoing-paperwork-reduction-act-review
    10. Research Data Center Proposal for Access to Confidential Data for NCHS - https://www.federalregister.gov/documents/2025/06/11/2025-10616/agency-forms-undergoing-paperwork-reduction-act-review
    11. Program Evaluation of CDC's Core State Injury Prevention Program - https://www.federalregister.gov/documents/2025/06/11/2025-10511/agency-forms-undergoing-paperwork-reduction-act-review
    12. Drug Overdose Surveillance and Epidemiology (DOSE) - https://www.federalregister.gov/documents/2025/06/11/2025-10622/agency-forms-undergoing-paperwork-reduction-act-review
    13. Generic Clearance for the Collection of Qualitative Feedback on Agency Service Delivery - https://www.federalregister.gov/documents/2025/06/11/2025-10515/agency-forms-undergoing-paperwork-reduction-act-review
    14. Assessment of Outcomes Associated with the Preventive Health and Health Services Block Grant - https://www.federalregister.gov/documents/2025/06/11/2025-10517/agency-forms-undergoing-paperwork-reduction-act-review
    15. NHSN Becton Dickinson BACTEC(TM) Blood Culture Media Bottles Shortage Impact Questionnaire - https://www.federalregister.gov/documents/2025/06/11/2025-10621/agency-forms-undergoing-paperwork-reduction-act-review

    Most of these are a second call for comments after the first round was released in fall 2024.

    Many received just one comment in the first round.

    If these data are important to you, consider submitting comments now.



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    Beth Jarosz
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  • 2.  RE: CDC issues 15 calls for comment

    Posted 06-12-2025 06:15 PM

    And there are 5 more today!

    1. Documenting Outcomes Associated with Persistent Tic Disorders (including Tourette Syndrome) in Children, Adolescents, and Young Adults through Surveillance - https://www.federalregister.gov/documents/2025/06/12/2025-10725/agency-forms-undergoing-paperwork-reduction-act-review
    2. Division of Foodborne, Waterborne, and Environmental Diseases (DFWED) National Hypothesis Generation and Investigation Module - https://www.federalregister.gov/documents/2025/06/12/2025-10724/agency-forms-undergoing-paperwork-reduction-act-review
    3. The National Violent Death Reporting System (NVDRS) - https://www.federalregister.gov/documents/2025/06/12/2025-10728/agency-forms-undergoing-paperwork-reduction-act-review
    4. Overdose Response Strategy Data Collection - https://www.federalregister.gov/documents/2025/06/12/2025-10727/agency-forms-undergoing-paperwork-reduction-act-review
    5. National Surveillance for C. auris - https://www.federalregister.gov/documents/2025/06/12/2025-10726/agency-forms-undergoing-paperwork-reduction-act-review


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    Beth Jarosz
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  • 3.  RE: CDC issues 15 calls for comment

    Posted 06-13-2025 06:50 AM

    Hi! Thanks for posting. It would be helpful to have an evaluation of these from people who work closely with these data if that is possible. What does this forum think about the specific changes? Is there guidance we could share out with our communities to help with sending in comments?



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    Lynda Kellam
    Director of Research Data & Digital Scholarship
    University of Pennsylvania Libraries / Data Rescue Project
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  • 4.  RE: CDC issues 15 calls for comment

    Posted 06-16-2025 12:24 PM

    Agreed. I don't know all of the data sources well enough to play that role for all of them. But I know NNDS is critically important. It is so important that it's the type of "call for comments" that most people don't respond to because the need seems obvious.

    This time it might be worth providing a show of support.



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    Beth Jarosz
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    Original Message


  • 5.  RE: CDC issues 15 calls for comment

    Posted 06-16-2025 12:25 PM

    And there are TWENTY more today with one aimed at access to restricted use data from the National Center for Health Statistics. I'm not sure I'll get to a full accounting of the other 19 today, but you can find the full list of recently opened comment opportunities here:

    https://www.federalregister.gov/agencies/centers-for-disease-control-and-prevention#documents



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    Beth Jarosz
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  • 6.  RE: CDC issues 15 calls for comment

    Posted 07-10-2025 11:08 AM

    Just skimming the NNDSS notice it seems pretty benign (would add some case notifications and pathogen-specific elements). I will try to review any others that I have experience with when I have a free moment.



    ------------------------------
    John Kubale he/him
    Research Assistant Professor
    ICPSR | University of Michigan
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    Original Message


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